Chemo Brain, Has it Affected You?

by Vicki on April 3, 2013

A couple of  months ago, we ran a contest that asked the respondents to describe a “chemobrain” moment. Here are some of the responses. I’d love to hear your chemobrain story! Please comment below.

“What I remember the most is it felt like I could not add or subtract numbers…it was really a struggle for me.  This bothered me alot as I worked for a credit bureau and numbers were very important.  I think that is why I then chose to go into banking…I just had to master working with numbers again.  Being a 25 year survivor and working for a bank for over 13 years now proves to me that if at first you do not succeed…try, try again.  Please enter me in this months contest. God Bless!!” Georgia S., Pink-Link member

 

“One day I forgot my best friend’s name, I could not remember how to get home from the hospital and I put the OJ in the cabinet.” Barbra T., Pink-Link member

 

“I will tell you about the chemo brain moment I had not too long ago. I do a bit of freelance writing and I have always been very good at remembering things and also good at remembering words. I am writing a book with my husband about our cancer experiences and how we met and got together. One day I was doing a bit of writing on my own and I couldn’t for the life of me remember the name for one of the chemo drugs I had. I had 3 different kinds at two different points in time. I knew all the names like the back of my hand and I could always easily tell you what you they were and I had sat here for the longest time staring at the screen trying to remember the name. It wouldn’t come to me. I had to turn off the computer and give up writing about it. Guess what the name of it came to me about 3 days later. I still find words that I would easily know just won’t come to me sometimes. I draw a complete blank on a word or a name. It can be really frustrating at times.” Paula M, Pink-Link member

 

“In the subject line of this email, I meant to type (and totally though I had typed) “chemo brain moments contest” when in fact I typed “chemo brain moments contents”. This is not just a simple typo and mistakes like this were my first clue that chemotherapy had changed things in my brain. 

I was a special education teacher and writing reports was a big part of my job. I was a fairly fast and accurate typist on the computer, but after I completed chemo, my speed and especially my accuracy were abysmal. The first problem was that I would make many mistakes, but even worse, it would (and still does) take three, four, or more attempts to correct each mistake. And then there was the odd nature of many of the mistakes. I would think “desk” and type “table”. I would think “test” and type “paper”. The words were not similar in spelling but were somewhat related in meaning. Other times I would do what I did in this email–type a word that was similar in spelling or at least started with the same letter (“super” for “student” or “hair” for “hand”). Spellcheckers do not catch those types of errors, so I spent even more time proof reading very carefully.

I still have most of these problems (over 9 years after compleing my chemo, although I am still taking an aromatase inhibitor) and they also affect me when I am speaking, less frequently than when I am typing. I have regained at least some of my speed, if not my accuracy. If I’m using my iPad or iPod, I blame the auto-complete feature  for the goofy words!” Kathi H., Pink-Link member

 

“I just wanted to share my chemo brain.  I had it so bad I lost my job.  I could not remember if I did things and my performance was getting worst and worst until they let me go.  I couldn’t understand why until I discovered I had chemo brain. Sheryl M., Pink-Link member

 

“I had a scheduled doctors appointment; I knew that because I read it the night before on one of my many post-its through-out the house. I set my alarm for the a.m.; woke up & prepared to leave. As I was driving, I suddenly discovered “I didn’t have a clue where I was going or why”. (Total blank-out). I searched my purse for notes, but nothing. I had to return home to retrieve my reminder.” Gloria D., Pink-Link member

 

“I could not figure out how to turn off our oven one night and had to ask my husband.  Also, multi tasking at work was difficult and I had to always do things in the same order everyday or I was lost and would forget things.  And work processes were hard, I seemed to feel I had to completely finish something and this caused problems with coworkers, who at the time were not compassionate which just made things worse.  I could not find the right words at times, even 3 years later it sometimes happens.  I found that things like reading, crossword puzzles and getting back to my quilting helped me regain much of my function.” Anonymous Pink-Link member

Post your story below!

{ 2 comments }

mom carissa and i at Appleseed

My mother, sister and I attended the Annie Appleseed conference

When I went through treatment in 2004, I believed in both conventional medicine and alternative therapies. I did a combination of both during treatment and continued with both after my active treatment was over. What that meant was that after every chemo session, my husband would drive me to the acupuncturist. He wasn’t trying to rid my body of the chemo, rather keep my body balanced so that the chemo could do its work. All throughout chemo, I was able to keep up my energy, work out and play tennis. I believe this was a direct result of the acupuncture. Now, 9 years later, I see my acupuncturist about once a month to stay balanced, I’m off of Tamoxifen and have upped my work out routine and nutrition guidelines.
So, it was natural for me to want to attend Annie Appleseed Project’s annual Evidence-based Complementary and Alternative Cancer Therapies conference. It was held at the beginning of March in West Palm Beach, Florida. It also gave me the perfect excuse to see my son, Michael who’s attending the University of Miami!

There was a lot of information presented and I furiously took notes! I’m going to try and share with you everything I learned.

Ancient Medicine – Mark Kaylor presented information on medicinal mushrooms. He was very knowledgeable and you can find out more on his website. He started by saying that there’s a lower risk for breast cancer associated with eating 3-4 servings a week of mushrooms, even button mushrooms. The Meshima mushroom stimulates the immune system and promotes healthy cell generation.  It also may enhance chemo effectiveness. The Maitake mushroom stimulates the immune system as well, lowers blood sugar and insulin levels. It also has liver protecting properties. The Reishi mushroom is great for overall balance. It increases cell oxygenation, lowers cholesterol and decreases insomnia. Mark stated that the longer you take the Reishi mushroom, the greater the benefit you receive.

BadAssVeganControl Your Destiny – John Lewis, a handsome, buff young man wore a “BadAssVegan.com” t-shirt, the personal training company he founded in Fort Lauderdale, FL. His presentation was very inspiring and included how to have a positive outlook on life in order to create your own destiny. At 15 years old, he realized that he needed to take control of his destiny because he weighed over 300 lbs. Today, he’s a vegan (doesn’t eat any fish or animal products including dairy) and working wonders with his personal training and nutrition efforts. He encouraged the audience to drop excuses, become more active (keep moving) and control what goes in our mouths. “Don’t view yourself as a loser and don’t be afraid to win,” he said.

Biofilms – I had no idea what to expect from Richard Longland and his talk about Biofilms. From Wikipedia, the definition is “an aggregate of microorganisms in which cells adhere to each other on a surface.” Mr. Longland, founder of WhyAmIStillSick.com, said that they are super bacteria that don’t show up on cultures and colonizes in various parts of our body. They start in our mouths and can escape into the blood stream. Periodontal disease is a biofilm. Approximately 1/3 – ½ of Americans have periodontal disease, which converts to about 17 million people with biofilm disease. He stated that about 550,000 people die every year from this type of infection. Oral wellness is key! Here are some tips, like them or not, to keep your mouth healthy:

- Consume raw vegetables, fruits, teas, xylitol

- Find a biofilm fluent hygienist

- Consider clay salts, essential oils (i.e. green tea, oregano oil, peppermint), ozone (I write more about oils below)

- Physical activity, sleep, love

- Floss, brush, scrape, rinse

- Decrease drug intake

- DON’T kiss your pets

Living Cancer Free- An older gentleman stepped on the stage. Bill Henderson watched his wife die of cancer 15 years ago and vowed to help other cancer survivors. He founded Beating-Cancer-Gently.com and set up his cancer coaching practice in South Florida. He stated that doctors describe cancer as something foreign that invaded your body. This is the wrong paradigm. He renames cancer as “Sluggish Immune System Disease (SISD).” One million cancer cells are produced in our body every day. Usually our immune system contains these abnormal cells and creates cell death (apoptosis). But, in some cases, somehow the immune system was overwhelmed and the cancer isn’t contained. 1.3 million Americans “get” cancer and 570,000 die every year. SISD is a result of lifestyle choices and experiences we have. First, we have to address the “cause” of the cancer. Yes, he said CAUSE of cancer!

  1. Emotional shock, stress and/or trauma (the adrenaline and cortisol-acid created during stress harms the immune system)
  2. Dental Toxins (root canals, fillings, cavitations, metal in the mouth, mercury being replaced creates anaerobic bacteria and/or biofilms to come out and grow)
  3. The things we put in our mouths (smoking, food, heavy drinking)

Most cancers are caused by 1, 2 or a combination of both. He recommended two books, “The Emotion Code,” by Dr. Brad Nelson and “The Roots of Disease,” by Dr. Robert Kulacz and Dr. Thomas Levy.

Dietary EssentialsHelayne Waldman is the author of “Whole Food Guide for Breast Cancer Survivors.” Helayne and I “met” on the internet several years ago but had never met in person. She’s dynamic and very passionate about nutrition, especially for breast cancer survivors. First, she explained what “GMO” is and how it has infiltrated our food supply. Monsanto developed the first GMO soybeans and corn to be resistant to pesticides. The term “Round Up Ready” refers to the pesticide Round Up, which is sprayed on the crops. These “Round Up Ready” plants resisted the pesticide so it kills only the weed, not the crops. About 80% of corn, 95% of sugar beets and 91% of soy crops are GMO. To date, we don’t know the effects GMO products will have on our bodies, so it’s best to stay away from them.

Helayne explained that fat is the gatekeeper of our body. Some fats turn up inflammation and some turn it down. We need a balance of Omega 6 fats and Omega 3 fats. Fat from corn, soybeans and canola increase the omega 6 fats in our body. Because corn and soybean products (high fructose corn syrup, soybean oil) are contained in many processed foods, our bodies are bombarded by omega 6 fats. That’s why it’s so popular to take an omega 3 supplement, to create the balance our body needs. Omega 3 fats are contained in coconut, avocado, olive oil and fatty fish. Other good sources of omega 3s are fatty fish, flax seed, walnuts, algae and a few green leaf vegetables  such as purslane.

She continued speaking about various important vitamins, D, K, A and B’s. She thinks that vitamin K could be the missing link. K helps give calcium direction. K1 and K2 draws the calcium into the bone and teeth. She recommends taking K2 supplements, but speak with your doctor about it to make sure it’s appropriate for you.

She defined 4 compounds we are deficient in:

  1. Magnesium – found in green leafy vegetables, nuts, unrefined grains. Magnesium helps the body manufacture glutathione (helps prevent cell damage due to free radicals).
  2. Zinc – found in shellfish, red meat, nuts, pumpkin seeds and legumes. Zinc plays a role in hormonal balance, a key in breast cancer prevention.
  3. Selenium – found in brazil nuts, organ meats and seafood. Selenium has shown to have several anti-cancer properties.
  4. Iodine – found in seaweed, seafood and dairy. Iodine increases cancer cell death (apoptosis) and decreases the blood supply to cancer cells (angiogenesis).
Luana, Valerie (bc advocate) and I

Luana, Valerie (bc advocate) and I

Essential Oils in Cancer Care – I met Luana DeAngelis, found of YouCanThrive.org, in 2009 at the National Breast Cancer Coalition’s Project LEAD institute.  As a breast cancer survivor, she realized her background in natural health was a turning point in her life. She founded YouCanThrive.org in New York City to support all breast cancer survivors during and after their treatment.  Luana spoke about a couple of important essential oils to heal the body during and after cancer treatment.

  1. Frankincense – increases cancer specific cell death by activating genes responsible for suppressed cancer cell growth/ death. Frankincense can differentiate between cancer and normal cells, targeting the cancer cells for death.
  2. Limonene – the effects of limonene suggest that it may be efficacious in the chemoprevention and chemotherapy in patients.
  3. Clove – found in the buds and leaves of clove. Clove oil inhibits cell growth and increases cell death in breast cancer cells. Clove oil is a key ingredient in Thieves, an oil that can be used to support dental wellness.

Luana concluded by talking about some essential oils that can give some symptom relief:

  1. Neuropathy – Frankincense, peppermint, reflexology
  2. Hot Flashes – Peppermint on the back and on the neck
  3. Fatigue – Peppermint inhaled and on the temples
  4. Pain – Peppermint topically
  5. Chemobrain – Peppermint
  6. Depression – Orange
  7. Anxiety – almost any oil will help
  8. Nausea – Ginger, peppermint inhaled and on the tongue
  9. Insomnia – Valerian, lavender
  10. Lymphedema – Juniper, tangerine
  11. Courage – Frankincense, tansy, rosewood

Three Ways to Help Stop Breast Cancer Before it StartsSusan Wadia-Ells is the founder of the National Breast Cancer Prevention Project, now known as Busting Breast Cancer. She spoke briefly about 3 ways to help prevent breast cancer.

 

  1.  Raise vitamin D3 levels to between 50 and 80
  2.   Avoid birth control pills. Yes, they are still linked to breast cancer!
  3.   Enjoy a cancer-blocking diet with anti-inflammatory foods, eating organic, etc.

Please view her video and visit her website.

Anti-Inflammatory Lifestyle for Prevention/ Treatment – I was fascinated listening to Bharat Aggarwal, PhD talk about anti-inflammatory components. He works at MD Anderson and was one of the researchers who identified TNF, Tumor Necrosis Factor, a key component in the immune system. Since 1989, Dr. Aggarwal has been investigating the role of inflammatory pathways mediated through TNF for the prevention and therapy of cancer and other chronic diseases.

Dr. Aggarwal started his talk by explaining that cancer is a preventable disease. Tobacco, diet, obesity, infections, environmental pollution and radiation promote cancer. By eliminating these, we can eliminate 90-95% of cancers.

NF Kappa B, the major mediator of inflammation that controls over 500 genes. By inhibiting NFkB, you can inhibit cancer. NFkB is the enemy within. Dr. Aggarwal continued by defining any disease ending in “itis” as an inflammation. He stated that nearly 43% of patients with ulcerative colitis could develop colorectal cancer in 25-35 years. Processed red meat is linked to colorectal cancer.

Dr. Aggarwal’s research found that 50 different spices can inhibit NFkB. Please check out his book, “Healing Spices” for more information. (I just bought the book and will review it in a separate post).

- Rosemary            - Black Curcumin

- Ginger                   – Turmeric

- Oregano               – Cloves

- Cardamom           – Black Pepper

- Cinnamon

 

In summary, the conference was fantastic! I hope to see you at the next one!

{ 4 comments }

WISE and Healthy Aging Seminar

March 5, 2013

In February, I attended a workshop in Santa Monica organized by the WISE and Healthy Aging nonprofit organization. The four panelists included: Dr. Daoshing Ni, The Dao Center, specialty in Fertility Dr. Linda Mirdamadi, MD, Kaiser, specialty in weight loss Dr. Mary Hardy, UCLA Simms Mann Center, specialty in Cancer Dr. Richard Corlin, St. John’s [...]

Read the full article →

How Do you Enjoy the Outdoors?

February 15, 2013

Our January contest winners received a beautiful post-surgery sweatshirt from It’s My Secret. We had 3 winners who responded to the question, “How do you enjoy the outdoors.” The following are their responses as well as some other responses we received. Please comment on how YOU enjoy the outdoors! “I love the outdoors.  I don’t [...]

Read the full article →

Cancer and the Work Place

February 5, 2013

At the end of January, I attended a 1-day seminar presented by Cancer and Careers and Navigating Cancer Survivorship. We met at the Cancer Support Community in West Los Angeles at 8:30 in the morning for a day of learning about cancer and the work place. We were greeted by Rebecca Nellis, VP of programs [...]

Read the full article →

2013 New Year’s Resolutions

January 6, 2013

Our December contest prize was a 2013 calendar donated by the Beyond Boobs organization. We asked our members to describe their top 3 New Year’s resolutions. Here are some of them.  I LOVE the last one! Please comment with your top 3 resolutions! “Less stress by doing more yoga, eating more “vegetarian” and participating more [...]

Read the full article →

Healing Friendships

December 30, 2012

The winners of our November contest won a copy of the book “Hidden in Paris,” by Corine Gantz. The healing power of friendship is explored in this book, so I wanted to find out about some of our member’s healing friendships during and post treatment. Here are some of their responses. “I think my healing [...]

Read the full article →

Dikla’s Trip to Ireland

December 4, 2012

Dikla Benzeevi is a metastatic breast cancer thriver and a breast cancer advocate. She recently attended the Breast Cancer in Young Women conference in Dublin, Ireland hosted by the European School of Oncology. Here’s her summary of her trip: I recently attended the Breast Cancer in Young Women Conference in Dublin, Ireland. There were about [...]

Read the full article →

Going Gluten Free!

November 21, 2012

I’ve been gluten free now for about 1 1/2 years and feel great! Gluten is the protein found in all wheat products. In the US, about 3 million people have a diagnosed problem with gluten, Celiac disease etc. BUT, it’s estimated that another 30 million have some kind of intolerance to gluten! Have you ever [...]

Read the full article →

From New Dad to Cancer Caregiver

November 6, 2012

This is a guest post written by Cameron Von St. James As my wife’s doctor looked at her and told her she had mesothelioma, all I could think about was how we were supposed to get through a diagnosis like that. Tears ran down her cheeks as she listened to the doctor. This wasn’t supposed [...]

Read the full article →